Caring for a child with a disability can be both rewarding and challenging. Families and carers often support their child in many areas of life, including daily routines, health, learning and wellbeing. The support needed is different for every family and can change over time.
There are many organisations and services that can offer help, but it is not always easy to know where to start. Support can include practical advice, emotional support, guidance on services, or help with finances and benefits. Having the right information can make things feel more manageable and help you feel more confident in your role.
Reaching out to charities and organisations linked to you child’s diagnosis can be a powerful way to obtain information and support and connect with others who have some understanding of your lived experience.
Anyone who identifies as a carer for a child can approach their local authority for a carers assessment. The support available varies dependent on your needs and the resources in your locality. This can be a powerful step to connecting with support and services in your area, particularly if you have not had the need or opportunity to connect with them before. You can also register as a carer with your GP, this allows them to understand that your home situation may be more complex and support you and your child in the best way for your situation, keeping you connected and well.
The information on this page brings together trusted resources to help you find support that works best for you and your family.
Useful links and resources
- Help for disabled children (GOV.UK)
- Mencap – Support for parents and carers
- Contact – for families with disabled children
- Scope – Support for families and carers
General help for carers:
Finding local support:
Financial help and advice:
- GOV.UK – Benefits for carers
- Turn2Us – Financial support for carers
- Citizens Advice – Carers help and support
Breaks and wellbeing:
